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« Previous EntriesA Week of Awareness for the Heart
Friday, February 10th, 2012
With Valentine’s Day next week, it only seems fitting that February 7 – 14 are CHD Awareness Week. Prior to three years ago, I had very little understand and/or knowledge of CHD. Now, thanks to my friend, Kristine Brite McCormick, and her angel baby Cora, I know much more.
Yesterday, Kristine had a guest post on my blog that explained how she learned about CHD. Her story is a hard one to read about, but by doing so – many babies and others have had CHD identified and saved their lives. If you do not know about CHD, I ask you to take some time to familiarize yourself with it. If you are expecting a baby, please check and see if your hospital does pulse oximetery testing on newborns to try to catch these heart defects that are often not caught otherwise.
My question to you this week is inspired by all of the CHD warriors and their families:
Did you know that it was CHD awareness week? Also curious to know what you plan on doing for Valentine’s Day on Tuesday.
Please also think about spreading the word about CHD awareness. The more that people know, the better informed they can be to watch for these items in their lives.
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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.
Aloha #190
CHD Awareness Week 2012
Thursday, February 9th, 2012This is the third year that I’m aware of congenital heart defects (CHD)—and my third year marking CHD Awareness Week (February 7 to 14). Some of you might remember because Beth has kindly opened up her blog to me each year.
My daughter, Cora, was only five days old when she passed away suddenly and unexpectedly as I fed her in December 2009. We thought she was healthy. She wasn’t. She had a congenital heart defect.
I’d never even heard the term. Now I make it my mission to make sure that every pregnant woman and mother has at least heard the phrase.
I know it’s scary. Luckily, Cora’s story is only one. And, it’s at the worst side of the spectrum. Some of these so called “CHD babies” live to be old men and women. Some of them are even athletes, movie stars and politicians.
The face of CHD is so varied. And, because the scars are hidden, often the faces of CHD are blurred and hidden too.
About one percent of the population has a heart defect, which doesn’t sound like a big deal until you compare it to other conditions, like autism (which I’ve seen various numbers for but often tapped at 1 in 110), Down’s Syndrome (1 in 800), and pediatric cancers (CHD kills more children than all forms of pediatric cancer combined). That’s not to say that those conditions need less awareness. I wish they’d get more, and I firmly believe there’s enough compassion around to advocate for them all, but I think somehow CHD has been overlooked. That’s changing. I thank Beth, and all of you, for being part of that change for standing up and speaking out for these babies and adults with hidden scars.
If you’d like to read more about Cora, visit http://www.corasstory.org
Kristine Brite McCormick writes about Cora (almost) daily on her blog http://www.corasstory.org. If not on her blog, she can be found on Twitter, @kristinebrite or Cora’s Facebook Fan page, telling Cora’s Story. Follow Kristine for more information about congenital heart disease or to learn more about the acts of compassion and kindness Cora has inspired.
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Note From Me: Three years ago, I met an amazing woman. A women who lost her baby girl Cora to CHD at five days old. Her strength, grace, and fight to save other children has inspired me. Today I am honored to call Kristine Brite McCormick a friend. I am so proud with how her work to get pulse ox for new born babies is taking place in more and more locations. Here is a segment that was on CNN last Friday about how Kristine and other mothers fighting for CHD awareness were wearing red for baby heart health.
Winter Means Pinning Lots of Soup
Thursday, January 12th, 2012Yes, I do mean I am pinning lots of soup this winter. If you don’t know what I mean come on over to Pinterest to find me.
Thanks to a sweet four year old that shared his cold, nothing sounds good to eat. I am craving my mother’s chicken soup, but that isn’t going to happen. So while trying to clear the congestion in my head, I went to Pinterest. I wanted to find soups for my family to enjoy, keep warm, and devour the rest of this winter. It may not have been THAT cold yet, but there are many more months where Mother Nature will likely have her last laugh.
I sent a call out to my friend on Twitter to see if they had any soup recipes to share. @Kimberaka who writes at From My Corner of Saratoga sent me three items on her blog. She shared how to make soup into dinner, a great New England Clam Chowder recipe, and the one below for Corn Chowder. Thanks Kim!
Source: frommycornerofsaratoga.com via TheAngelForever on Pinterest
Then, I started to do random searches on Pinterest for soup. Something I have also been craving is Pho. Since TechyDad does not like to eat meat when out, we have not been able to locate a place to get Pho for him. Thanks to this pin, we just may be able to make some at home soon.
Source: keepitskinny.wordpress.com via TheAngelForever on Pinterest
It was hard to decide what to and what not to pin, but I was selective at this point. My love of cauliflower and the fact that my oldest son also likes it made a recipe for Caramelized Cauliflower Soup jump out. This sounds really delicious and different to me.
Source: sproutedkitchen.com via TheAngelForever on Pinterest
Since we keep a kosher kitchen, we often make vegetarian soups. I do miss the hearty meaty soups, but love when I find alternatives. Plus with “burger crumbles” from companies like Morning Star, you can easily revamp a great recipe. Here is one for Morning Star Vegetarian Tortilla Soup.
Source: morningstarfarms.com via TheAngelForever on Pinterest
Of course, a girl can also dream of a soup that looks like a major splurge. I wonder if this one from the Disney Parks Blog for Loaded Baked Potato Soup can be tweaked into a kosher variety (hello soy bacon in a pinch).
Source: disneyparks.disney.go.com via TheAngelForever on Pinterest
Do you have a favorite soup recipe to share? I would love to know about it. Please let me know about it in the comments. Feel free to leave a link to a post or the recipe online. My need for soup thanks you and I will add it to my soups pins on Pinterest.
Preoccupied with Pinterest
Friday, January 6th, 2012“‘Twas the night before Christmas and all through the house, I was trying to avoid things and got distracted by all things Mickey Mouse”
What am I talking about? Just before Christmas, when I was busy with all things Chanukah and beyond, my friend Kelby Carr, aka @TypeAMom, mentioned something about Pinterest. This was far from the first time she had mentioned an addiction to it. I heard about it while in NYC during SheStreams. Of course, I tried to stay away. Why? Not because I didn’t think I would like it. I knew I would and didn’t want another item in my bag of tricks.
Well, Kelby brought me to the dark side that evening. When I said I was avoiding it, she sent me an invite. Within minutes, I was a sold. What’s not to love as a mother, geek, social media person, and crafter? Seriously, WAY too much to offer.
The beauty of Pinterest is you can personalize in any way you want. So far, I have organized my pins into 16 boards. My topics include:
Disney Life For Me – Recipes to Try – Sweet Goodness – Knitting Things – Crafts for Kids – Geek I am – Need to Read – For Those Eeyore Kind of Days – Chanukah Oh Chanukah – Recipes that we Enjoy – Bullying Be Gone – Books from Tuesday Tales – Just for Laughs – Around the House – <3 Day Items – Birthday Party Ideas
On Type-A Parent, Kelby has shared 5 Pinterest Tips for the Beginner. This post does a great job summarizing things for the newbie getting to know Pinterest. Now, let me share a few fun pins.
From “Disney Life For Me” – a favorite Dreamfinder and Figment post from Zannaland
Source: zannaland.com via TheAngelForever on Pinterest
A funny saying that several fellow Geeks shared and I loved for my “Geek I am” board:
Source: nerdquirks.tumblr.com via TheAngelForever on Pinterest
Of course, there are lots of sweet temptations in my “Sweet Goodness” board. Here is one with cookie dough that is taunting me to make it one day:
Source: recipegirl.com via TheAngelForever on Pinterest
There are SO many other goodies out there, but I will leave you with those three pin examples. If you are on Pinterest Type-A Parent also has a Pinterest Profile Linkup that they are running to locate more people. Oh one more thing, congratulations to Kelby. While I sit and type this, she just announced that she was signed on to write a Pinterest for Dummies book.
So my question to you this week:
Are you on Pinterest yet or not? If you are, what do you like using it for? If you are not, I would love to know what you are waiting for.
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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.
Aloha #185
The Year that was 2011
Monday, January 2nd, 2012It is hard to believe that 2012 is here. Once again, the year went by with a lot of fun, photos, and memories. Here are just some of the highlights from the year that was 2011.
January:
- Mother Nature started her tricks with a lot of snow that came our way. We had fun making memories with the sled in our own yard.
- I started writing Education posts at The Disney Driven Life and introduced it to everyone. Thank you to J.L. for the amazing opportunity. I look forward to getting back on track in 2012.
- NHL lost three more teeth during the first three months of the year. Much relief as they came out without dental assistance.
February 2011:
- The Snowpacalypse welcomed the month of February threatening 18-30 inches of snow. It left lots of the white stuff and tons of ice damage. Our neighbors probably had a laugh with knee-highs on our roof.
- With all of the freezing cold, even the little guy was trying to ride Tony Pony to Disney World to escape. Of course, we were gearing up for Disney Social Media Moms Celebration 2011 in March.
- We continued to take the boys to introduce them to hockey. They had a blast checking out all of the extras between the on ice action.
March 2011:
- Mother Nature teased us with warmth to melt snow mountains early in the month, only to knock us down with an ice storm to remember. Crackling trees and ice pelting the house is hard to listen to in the dark.
- A magical trip to Walt Disney World for the Disney Social Media Moms Celebration allowed me to see amazing friends, learn, and have fun with my family. Lots of items from that trip were shared throughout the months ahead.
- Of course, the reality world hit hard once we got back from our magical adventure. Tough decisions were ahead and left my head spinning. All of this made me remember the wise words of Rene Syler – The Good Enough Mother.
April 2011:
- Passover preparations were dominant this month. Making lists, shopping, and getting the house ready. Of course, we also captured memories of the holiday itself.
- Lots of moments where I wished I was not the adult who had to make decision. Thank goodness, JSL helped to keep me smiling along the way.
- A routine visit to the dentist for NHL revealed the need to see an orthodontist. We made the appointment for several months later in June, but knew the missing adult tooth was going to be something to contend with.
May 2011:
- Even moms need field trips. Yes, the weekend before Mother’s Day, Cutestkidever and I jumped into the car for a lunch date with Rene Syler.
- JSL’s 4th birthday and new love for Jake and the Never Land Pirates required working on a theme for his party. Supplies were bought and cupcakes were made.
- The sun coming back also provided an opportunity to test out our new grill, plant some veggies, and attempt to regrow our front lawn.
June 2011:
- After taking NHL out of a school he had been in since kindergarten, TechyDad and I watched as our second grader started to flourish in a new school. Once again, we started to believe in the education system. This entire drama made it SO hard to bite my tongue and keep a lot of things to myself.
- Father’s Day we spent a fun day together. We had lunch out, went mini-golfing, and had dinner with Nana and Papa. It reminded me of how special these moments together are.
- The end of June marked a major milestone for TechyDad and me. We celebrated out 10th wedding anniversary. Memories of our special day, honeymoon at Walt Disney World, and everything over the ten years together came flooding back. Of course, the day of our actual anniversary was a house nightmare. A plumbing fix resulted in us moving out for several days.
July 2011:
- The month started with a visit out to see my brother and his family for 4th of July. While there, we went cherry picking and beat our previous record. A day at Niagara Falls was also included in the fun adventures.
- Both of the boys were home with me for the entire summer. We looked for fun activities to do. We often ended up at the library for learning and crafting.
- We also spent a lot of time at Michaels crafting our way around the world. Yes, Michaels and Crayola teamed up to make a great passport of crafts for kids to do that were mostly free. The kids learned so much and we found some great new crafts to try later on.
August 2011:
- At the end of July, we started to think about a magical getaway to celebrate our 10th anniversary. Shortly after this, we booked a fantastic trip to relive our honeymoon at Walt Disney World. Everything was planned from the hotel, dining, and place for the kids to stay over Labor Day.
- NHL turned 8 in August and requested lion cupcakes. We documented the construction process and birthday celebration.
- The end of the month was heart breaking. We watched as Hurricane Irene wrecked havoc up and down the east coast. Thanks to the fear of the kids being stuck with no power and our flight getting canceled, we postponed our big trip to Disney. Being responsible adults was tough.
September 2011:
- The boys started back to school after Labor Day. NHL loved his new school and was settling into third grade. JSL thrived at his familiar nursery school and we had lots of fun going apple picking with his class.
- As a Type-A personality, I am a planner. So it was very rare for me to pack up in just a few days notice to head to New York City for the first ever SheStreams Conference. It was an amazing time seeing friends, learning, and getting away for a weekend. A huge thank you to all of those that made it a magical and empowering weekend.
October 2011:
- As a third grader, NHL started to take band in school. He picked percussion instruments and drum practice even got a Disney touch thanks to Nana and Papa.
- During the month of October, two large packages arrived to host parties. The boys loved learning and playing with LeapFrog items during the Learn, Create, and Share Party. The LeapPad had been an amazing addition to our family learning electronics. HexBugs also invaded our house for some glow-in-the-dark holiday fun.
- Halloween was a lot of fun thanks to everyone staying healthy. NHL was Darth Vader, JSL was Jedi Tigger, and even TechyDad dressed up. Of course, Snowtober threatened to make things more interesting just a day before heading out.
November 2011:
- The start of the month meant going to a fun event for bloggers at Price Chopper, headquarters. The Price Chopper Holiday Cheer afternoon showcased endless holiday entertaining ideas. Of course, I wanted to highlight the Decadent Desserts line.
- This was also the month that my entire family fell in love with Susan Egan. I had been lucky enough to see Susan at Disney Social Media Moms in March, but her new CD review was a hit in our house. My little guy even had a crush on her and certainly did care more than Nina.
- The boys learned about what an aufruf is and spent a lot of time with family in November during Thanksgiving weekend.
December 2011:
- The month began with full on Muppet madness in our house. The boys have always loved the Muppets, but the anticipation of the new movie brought it on even more. There was Muppets mania clothing style and lots of Muppet music playing in our house. Heck, I even tossed in some fun Muppets nail polish. Bringing things from our childhood back are so much fun.
- Chanukah was more quiet this year as we focused on time with each other, festive music, watching the menorah glow, and less attention on presents.
- A surprise trip to Build-A-Bear workshop introduced our family to Snowflake and Clumsy. Snowflake has been on a lot of adventures and even requested a beary special knitted scarf.
There were so many other things that made 2011 special and amazing. Thank goodness that is what archives are for. We can look back, laugh, cry, remember, and reflect.
What are some of your favorite part of the year that was 2011?
Thinking Pink October 2011
Friday, October 7th, 2011
As October rolls around, brands, bloggers, news shows, and most of the world start to point their attention to the color pink. October is breast cancer awareness month, so it only makes sense.
Cancer in general has hit so many people that I know and love. Breast cancer has done the same. As I wrote in the past, my Aunt S is a breast cancer survivor. She was diagnosed just over eight years ago, just before NHL was born.
This coming year, I will likely have my first mammogram. When I left my annual visit with my gynecologist in the spring, she gave me homework. She wanted to know exactly when my great-grandmother was diagnosed with her cancer. I knew she was very young when she passed away, but when I found out how young, the realization hit hard. My Mimi’s mother was diagnosed when she was 32 and passed away by the age I am going to turn in December. With this information in hand, I am sure I will be getting more screenings this year.
Am I scared about having a mammogram? No, I know it may not be comfortable – but the amniocentesis and labor that I have experienced are likely worse. Two years ago, Robyn vlogged about her experience with a first mammogram. I love that she did this and shared her feelings along the way. If you have never watched this, I highly recommend it. Thanks to Robyn, I hope to document some of my experiences in the coming months.
My friend Debra, A Frugal Friend, lost her mother to breast cancer six years ago. For the third year in a row, she will be having a breast cancer awareness event on her blog in honor of her beautiful mother’s memory. Debra shares breast cancer news, personal stories, and some giveaways from companies that support breast cancer research.
So my question to you this week:
How do you help causes like breast cancer awareness and others that are important to your family?
To all those who are survivors, have lost a friend or loved one to breast cancer - hugs to you. Remember, early detection saves lives, so please remind both men and women to do monthly exams. Yes, men also get breast cancer.
P.S. Do not forget to stop by my two current giveaways running right now. You can find them here and here.
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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.
Aloha #172
Disney Store Dreaming
Saturday, October 1st, 2011Dear NHL & JSL,
Once upon a time, in a galaxy within our reach – there was a Disney Store at our local mall. Actually, before the two of you were born, we had two of them. Then they closed one to centralize everything. Just around the time JSL was born, the remaining one closed its doors for the last time. It was a place that we often went to. We were able to be with Disney and have a fun time. Now, the closest store is several hours away.
A week ago, Shannan and I went to to the Disney Store in NYC on one of our breaks during the SheStreams Conference. To say that I was in heaven would be an understatement.
There was so much to look at in every corner of the two levels of the store. The Phineas and Ferb area immediately got me to check everything out. I now wish I had bought you both something. 
There were endless amounts of the Disney Princess items. Those areas of the store were gorgeous, but my attention went to places like the gigantic Toy Story section. So many possibilities that my head was just spinning. 
I joked to Shannan that the two of you would not have known where to go next. I think the Marvel area would have kept you there for a while. Lots of Spiderman, Ironman, Captain America, Hulk, and friends. I will say, I am sad that I didn’t get you each one of these:
Back on the first floor, I found what I was looking for. There was a giant display of Vinylmations. I knew this was what I was going to bring both of you and Daddy. I bought each of you a Lion King box to open at home. Then, I saw the NYC Cab series that are only available in this store. I picked one of those tins for Daddy. Then, for the heck of it, I grabbed a Muppet Series 2 box.
Oh, I also stopped myself from picking up one of these for each of you:’
The reason I stopped, I want to head to NYC on a train with all of you for a fun day that includes a stop at the Disney Store.
When I got home and started to unpack, I had the bag from the Disney Store ready to go. The two of you were thrilled with the new Lion King packages. I do not think you were aware that they existed. Daddy was very happy with the two he got as well.
So now we just have to figure out a time to take the train to the city for a fun day together. There are a ton of places that we HAVE to go to and the Disney Store is just the first on a long list. Now if only we would get our Disney Store back here.
Love,
Mommy
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If you want to participate in Dear Kid Saturday, head on over to Cutest Kid Ever by clicking on the button below.
Making Time For You
Friday, September 30th, 2011A week ago, I was heading to SheStreams in NYC for the adventure of my life.
I am still digesting all of the information that I learned during the two days in New York City. Maria Bailey and her team packed in an amazing weekend. Thanks to the amazing keynote speakers and panel members, my brain is still moving a mile a minute.
SheStreams was also the first time I have been away for a night without one of the boys since NHL was born eight years ago. Yes, I missed TechyDad, NHL, and JSL – but it was nice only to worry about ME and put ME first. The wise words of Rene Syler (aka Good Enough Mother) came flooding back to me Saturday morning when she reminded us that it is ok to move yourself to the top of your to-do list.
Late nights in NYC chatting, networking, and laughing with new and old friends reminds me of the importance of ME time.
On the flip side, I also know that TechyDad needs time away to do things he likes, and we need couple time as well. Mom and Dad need to keep their identities to be their best for the kids. As we begin 5772 this Rosh Hashanah – I hope that our family can work on this aspect of life.
So my question to you this week:
How do you make sure to get time for YOU and what do you like to do with these special moments?
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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.
Aloha #171
Train Ride Home From SheStreams 2011
Monday, September 26th, 2011By the time this is posted, I will be home and back with my family. Right now, I am sitting here on the train coming home from New York City.
So many things are going through my brain thanks to the SheStreams Conference. Maria Bailey (@MomTalkRadio) put on an amazing conference. A huge thank you to her, the sponsors, and SheStreams staff for a truly magical weekend. I learned so much, met amazing people, and saw fantastic old friends.
Although I am tired from an action packed weekend, I am energized and feel like I can take on new and exciting projects. I have been inspired to try items that may have scared me in the past, but now I am ready to take care of business and work on bringing things to a new level. I am a blogger, but I am so much more. The world of social media has shown me that a teacher on hiatus has a lot to offer the world. Now, I need to take the necessary steps to keep moving forward.
I have a lot of amazing things to share from SheStreams, but it is going to take me time to wrap my brain around everything. First, I must head home, hug my boys, give them something special that I bought them at the Disney Store and get back into the swing of things.
A huge thank you to my amazing husband, TechyDad, for pushing me to go on this adventure. Being a major Type A person, this was a whirlwind weekend that I never could have imagine, but was so worth it. To Tamara, MomRN – I missed seeing you at She Streams, but was honored to have bought your ticket and go to this first ever event.
Another thank you to Shannan for kicking my butt into high gear and getting the ticket and then figuring out the rest. You were beyond right, I am glad I went. Of course, another big thank you to Kelby, the head Type-A-Parent, I can not thank you enough for all that you did this weekend. It was so much fun hanging out with you. I hope you are able to find your spot that was MIA all weekend and rendered your phone useless. My dumb phone and I can not even imagine the pain you must have been in.
One other shout-out to Rene Syler (more coming later about the head GEM). Thank you for also kicking me in the rear and reminding me before SheStreams to move myself back to the list of important to do items. It was a pleasure seeing you speak, learning with you in ResourcefulMom’s rockin’ session, chatting, and surprisingly not needing the bail money that you told TechyDad to send me.
I met many other people and learned so much more, but that will be coming soon. If you went to SheStreams, I would love to catch up with you online if I missed seeing/meeting you in person. Please say hello and remind me to catch up on my Twitter followers since I have been slacking some. Safe travels to everyone as they head back home.
SheStreams and NYC Bound
Friday, September 23rd, 2011
Yes, you read that right. I am heading to SheStreams today. I have always wanted to go since they announced the conference, but things came up and other factors were there.
Then, out of the blue Wednesday with less than two days before I would have to go, things started to line up. TechyDad gave me the green light, Nana and Papa can help with the kids after school Friday, and a ticket was purchased from a friend that could no longer go. It just worked out amazingly.
I am excited and scared at the same time. I have been to BlogHer (NYC 2010) and the Disney Social Media Moms Celebration, but those were always traveling with TechyDad and other friends. This will be me going by train for the first time into Penn Station. Of course, once I get to NYC I will meet up with Shannan, Kelby, Amy, Rene, and countless other amazing women. The opportunities for learning, networking, and getting away with the girls is huge.
Did I mention I am a Type A person? To say that I am running around the last few hours trying to think of what I will forget is an understatement. So my question to you this week:
What stresses you out about travel? Is it the planning (or lack of), packing, or something else and why?
If you are at SheStreams, I hope to meet up with you. You can find me on Twitter @TheAngelForever.
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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.
Aloha #170
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