sickness« Previous Entries
If our neighbors were looking at us funny on Father’s Day, it made sense. You see my boys were dressed up like superheroes on our front lawn for a photo shoot.
This is not something that we typically do. No, we were on a mission. A mission to help a mother. A mother who has had her life turned upside down in just over a weeks time. A family that heard the news nobody ever wants to learn, no less about the six year old member. Phyllis Sommer, aka Imabima, was told that her beautiful son Sam has Leukemia. Cancer – the “c” word that nobody wants to utter or have used in a sentence about their child was now a reality for the Sommer family.
Phillis and her husband Michael are both rabbis and started a blog to document about Superman Sam. Just after we got home from having Father’s Day brunch I noticed that Phyllis had a new blog post up: Superheroes for Sam: A Photo Project. Our plans changed and superhero items were quickly grabbed from around the house. When we explained to the boys what we were up to, they wanted to see Sam’s photo. They had heard me talk about Imabima before, but did not know Sam. They were excited to be part of Superman Sam team to help someone close to their age smile. NHL knew that this was a mitzvah. To me, it is more. It is not only making a little boy smile during a time that he never should be dealing with – it is helping a mother to grant a wish for her little boy. A mother who is trying to make sense of this life changing news. This mother who could be any one of us.
Phyllis, our thoughts, prayers, and Team Superman Sam wishes are with you from our part of New York. Let Sam know that NHL, JSL, TechyDad, and I are cheering him on. And most important know that TechyDad and I are sending you and Michael hugs and well wishes. Know that although we are not geographically close, we are with you. A package from us will be coming soon.
If you want to be part of Team Superman Sam and send him a photo, please head to the post for mailing address and other information here.
Wednesday was a great day. After your graduation from nursery school, you had a special request for a lunch out. We went there, played outside, played at home. Then, you helped me to finish writing your birthday thank you notes. When we were done, I asked you to head with me to the mail box. It was at this point that I realized that we never did buy the gift for one of NHL’s teachers. NHL also mentioned that the following day he was supposed to bring in a snack to celebrate his summer birthday.
So you and I went to Price Chopper because I knew we could get some cookies without nuts and gift cards. When we got home, we talked with our neighbor while you ran and ran and ran around the house. Then, we took things inside and went to the mailbox. At bedtime, you started coughing. No matter what we did, you were not able to stop coughing. It was time to try something to help. I assumed it was asthma kicking in.
Once the nebulizer was over, it was already pretty late. We put you back into bed and sat in the room to make sure you would settle. Suddenly, I heard Daddy try to get you out of bed fast. You were throwing up and gasping for air. You were whisked away to the bathroom, where you were shaking horribly and could not stop this from happening over and over. We eventually got you into our bed and comfortable.
I dozed off briefly until you started to toss and turn. You started to cough again. We pulled out the nebulizer for another treatment since it had been five hours. Nothing got better. Your color was getting worse and your breathing getting more labored. Your little body was clearly in distress. We called Nana and Papa to see if they could take us to the ER. I was afraid to drive you alone with your breathing the way it was.
The ER brings back some bad memories for me. Thank goodness you do not recall a lot of the times you have been there for your fevers. The nurses were really great and had a doctor come to you in triage. They immediately noted that you had croup – that barking cough echoed down the halls. I’m not sure why I thought you were too old for that. The nurse and I tackled you to start some steroids to help the cough that was still horrible. Since your lungs were clear, we were told we just had to keep the meds in you and then could head home. We were moved to an area in the hall to sit in a chair. You immediately curled up in my arms to try to sleep.
I sat there thanking my lucky stars that it was nothing more serious. Your lungs were healthy, your ears fine, and you were getting enough oxygen. A few hours after we arrived in the ER, we were sent home. You crawled into bed and managed to sleep for a few hours
I was not able to sleep. I watched you breathing and holding onto Perry who had also comforted you at the hospital. My mind was racing and I just wanted to see you rest in our home. Thank goodness you are feeling better now and soon you will be up to speed to really begin our summer vacation.
As a parent, we love to remember the days that our children take their first steps, say our name, and other milestones. I have those memories in the front of my mind, but some others still haunt me to this day. The days that my boys have had febrile seizures will always be something I remember. NHL only had one, but it was the first that I experienced as a parent. JSL has now had five of them since he was nine months old.
After each of the febrile seizures that the kids have had, we would get especially nervous when the boys would have another fever. We practice very strict fever lowering protocol thanks to our doctor. Every week and month that goes by after a febrile seizure is a wonderful accomplishment. It typically means we are less likely to have a repeat event. Of course, JSL is not the typical child. He has shown us that even after 20 months, they can happen again.
On June 3 of last year, my heart skipped a beat. It was the moment as a parent that you never forget. It was getting a call from school to meet your child with a full emergency response team out on the playground. At almost the one year mark, we are thrilled that we have made it this far without another episode, but my guard is not down.
The timing right now could not be worse. On Tuesday, JSL went for his five year well visit. I knew that we had to make up some vaccines that had not been done earlier since he was not feeling well. Since he was healthy, happy, and good to go the doctor, I agreed to allow JSL to have his DTaP and Polio vaccines. We are holding off on the MMR until later in the summer. With his fever tendency, everyone felt that combining the MMR and DTaP would not be good.
Before we left, the doctor and I talked about preventative fever measure. We were going to give JSL ibuprofen around the clock for at least 24 hours. Right before bed, JSL had a dose of medicine. He was sleeping so soundly we didn’t have the heart to wake him in the middle of the night for more medicine. At 6:45, we heard a scream from JSL. He was howling and burning up. All day Wednesday we battled the fever. At one point, it was 102 with medicine (his normal temperature is just about 97).
With any luck, this fever will come and go and his body will fight off the reaction to the DTaP vaccine. Of course, now I am bracing myself for the next shot in a month. I just hope we can get to that year mark and beyond. Each month that passes, JSL gets older and kids usually do outgrow febrile seizures by 6-7 years old. I just hold my breath and hope.
Do you have one of those parenting moments that you can not forget? Please feel free to share and vent below.
P.S. The other night I was in tears reading this post from Megan on Velveteen Mind. Her little girl also had a febrile seizure. So very close to home and brought back a flood of emotion. The truth is posts like ours help to raise awareness. Not only are they therapeutic to the parent after, but they let others know the signs, symptoms, tell-tale signs IF their children have a similar experience. We are not trying to scare people, but help people to be aware. A parent will forever remember that moment seeing their child’s blue or gray lifeless body.
This has been a rough week for you. First, a fever in the middle of the night. Then, you had nap/night terrors that scared us out of our mind. When we went to the doctor, your throat was swabbed and ear blasted with a new contraption to clean it out. In the end, it looks like you have a virus. The fever went away, but suddenly a horrible cough and leaky nose appeared.
While I sat by you and you slept away the fever, I pulled out some old school knitting of mine. I wanted to make something special to help you smile. It brought me back to when I was knitting next to your hospital bed in February 2008. Of course, this time you knew I was making something for you and were so excited when you saw what was hidden within the cloth. The minute it came off the knitting needles you declared it was yours and a blanket for your little monkey. Of course, you were too tired to get your monkey, so you went to rest with it on your puppy pillow.
When NHL saw the hidden Mickey in the cloth, he asked me to make a blanket for his little lion. With your help, we made sure this was made quickly.
Of course, now you are asking me to knit you a Mickey Mouse blanket. Hmmmm……I will have to figure that one out. Now, to work on getting rid of the cough and making you feel better.
While everyone else is watching to see what Phil the groundhog in Punxsutawney, Pennsylvania sees this morning, I will be busy. First, I will be taking one kid to school and trying to make an appointment for the little guy to see the doctor. Much of Wednesday was spent trying to get the sick little guy to do this
He was so exhausted after waking up during the night with a fever. There are no other symptoms, aside from a cough when he gets upset. He did get sick all over me, but it was not illness related. JSL is NOT a fan of medicine. Unfortunately, with his febrile seizure history, we do not wait around with fevers. We have to act quickly to get his temperature down. While he has gone eight months without one, we never know if today could bring another seizure.
We did not go to the doctor Wednesday because it may just be viral. If he is miserable during the night, we will likely head to the doctor to have his ears and throat checked to make sure. JSL never complains about his ears bothering him and often they are the cause of fevers.
While we rest, I do hope to read some Groundhog Day books, like the one I reviewed last year.
If you are looking for other Groundhog Day ideas, I found some and pinned on my Groundhog Day board. There are pancakes, fruit snack, predictions craft, cupcake push pops and more. Stop by because the photos are amazing and they link to the items shown.
Do you have any special plans this Groundhog Day? What do you think about the little rodent’s prediction given the relatively mild winter in a lot of the country?
« Previous Entries