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Polliwalks on parade
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My little adventure monkey
Dear JSL,
Thank goodness things were back on track this week. You have been feeling so much better and most important are fever free. In less than two years time, you have given us way too many scares. You are such an adventure seeker and love to try anything and everything your big brother does.
This week you helped me to "walk" and "kick" lots with Leslie Sansone. Of course, you were silly and wanted to take the DVD case with us when we went out. I think you have a little mini-crush on Leslie. Thursday we spent the afternoon the morning with Nana. You had a great time really exploring Chuck E Cheese with almost nobody else there. Then that afternoon you and NHL made Mimi and Aunt T smile. You hugged everyone and later at night modeled your new blanket that Aunt T made for you.
It it hard to believe that in just over a month, my baby is going to be two. Time has gone by too quickly. Stay sweet my little one.
I love you,
Mommy
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Dear Kid Saturdays at Cutest Kid Ever
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Four years of physical therapy
About four years ago I made a very difficult phone call. JL and I decided it was time to have NHL evaluated with Early Intervention. Our little guy had been talking sentences for quite some time, but he could not walk on his own. He had no real ability to balance if a finger was not held by an adult. After a while, daycare convinced me that it could not hurt to see what happened.
For weeks we worried. Was there something more wrong with NHL’s legs. We went to pediatric neurologists to rule out many different items. They all agreed that it did not present itself like CP or MD. Instead, they believed that he was hyperflexible and had low muscle tone. Their thought was that with some major physical therapy he would not only be able to walk, but eventually catch up to his peers.
NHL has been receiving physical therapy for almost four years. He walked on his own just a few weeks after starting (fluke) right before his second birthday. Soon he was running, jumping came quite a while later and just this weekend we added bike riding to the list.
If you saw NHL with a group of his peers, you would never know he had low muscle tone. These days the only thing that lets us know is gets tired more quickly than other children. This is because his body works extra hard just to stay upright and balance – without adding walking/running/jumping into the mix. We often forget about this and do not understand why he gets tired and a little grumpy after a long day at school or when we go running around on errands.
Here is NHL getting ready to test out his new bike at home for the first time. Helmets are a must before getting on.
Even JSL was happy to be outside in the gorgous weather to watch his big brother. He loved following everyone in his "car car" after being cooped up in the house for the week.
Next thing I knew, NHL was off . . . riding his bike down the block.
The smile on his face made us feel so great. We think that secretly he had always wanted to ride a bike, but was too frustrated to ask. Finally his dreams were coming true thanks to all of his hard work in physcial therapy. NHL was so proud and wanted to show everyone his new bike.
At first he asked for a few pushes to give him some momentum. Then he teased JL, asking for help and then riding off just as he arrived at the bike. Yes, he really was riding a bike and kept it up until the sun was going down.
Now NHL hopes that the rain will stop and it warms up so he can enjoy the so-called spring with his new bike and little brother following along in his car.
Thank you to all of the therapists that have helped NHL to come so far!
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Scary moments
It has been a very tough week here at Chez Angel. If you had told me last Friday that I would soon witness my little guy have two febrile seizures in less than 30 hours, I never would have believed you. Most of the week has gone by in slow motion as we have battled a high fever in hopes of avoiding yet another seizure.
Over the week, TechyDad and I have had a lot of time to think about things. TechyDad sat down and actually wrote about the scariest moments (thus far) in his life. Many people may not understand how we are able to sit and type these out, but it truly is therapeutic. I know that last February, and again this week it helped me to get my fears out in the open, to face the facts. Did I cry? Did I have nightmares of seeing my blue and lifeless son in my arms? Of course I did, but blogging helped immensely.
So my question for this week:
What is the scariest moment of your life so far? If you are a parent, does it have something to do with your children?
My answer this week would have to be the same as what TechyDad wrote.
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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the Mr. Linky there if you are participating.
Aloha #41
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Spring FEVER update
Here is a brief history of what has happened so far with an update:
- Just before dinner Saturday night JSL slumped over on the floor. Minutes before this he was playing and chasing after his big brother.
- He turned blue, was rigid and had a locked jaw.
- Eventually realized he was having a febrile seizure (previously had one 13 months before).
- Went via ambulance to what we thought was the best ER for pediatric cases.
- In the ER the only things they did was to take his temperature (confirmed it was a fever), gave him motrin, listened to his chest, looked in his ear.
- WE had to ask for them to look in his mouth and down his throat to make sure it was not something there (strep/coxsakie virus)
- Discharged by the ER quickly with NADA of a cause for the febrile seizure. They never once asked to do a blood test or anything further.
- Sunday JSL played in the house and we kept Motrin and Tylenol in him.
- I fell asleep next to him that night and woke up at midnight to the little guy thrashing about and frothing from his mouth. Temperature was at least 103.5 and he had his second febrile seizure in less than 30 hours.
- Called our doctor at 12:30 at night. Agreed we should combat fever at home and not go back to useless ER.
- Monday we took JSL to our doctor. Did strep test (negative) and checked other items.
- Finally someone listened to us about the congestion JSL had been having at night for the past week (thought it was teething). Doctor saw his bloody nose, heard about the discolored mucous and said it sounded like a sinus infection.
- One ear was blocked by a lot of wax and may have also been hiding an infection.
- Given strong antibiotic to give JSL to attack whatever is getting his little body.
- Kept alternating fever reducers every two hours for fear of another febrile seizure.
- Wednesday morning JSL woke up and seemed cool at first. Within 15 minutes he was VERY warm again. 101 with the thermometer.
- Called our doctor to let them know that we were still running a fever on day 2 of 5 with the antibiotic.
- Doctor’s office wanted a urine specimen to check that possibility of infection that would not be covered on the antibiotic.
- I questioned if a CBC blood test should be run. Sure enough our doctor did not know that it had not been done in the ER and requested one.
- Took JSL to another hospital for the blood work. No luck getting blood. The phlebotomist was great, but JSL is a hard stick even without being partially dehydrated.
- Last night got some urine to bring to the doctor today and got up every few hours all night to check on temperature.
- This morning JSL’s temperature is at about 99 without any medications in him. His normal body temperature is 96, so this is still slightly elevated.
- While doing a diaper change I now see a rash all over his tiny body. With new development off to call the doctor again.
This is the little guy yesterday. He climbed up on the couch and immediately took a nap on his own.
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