When to Seek Early Intervention

When you finally decide to start a family there are a lot of items that you never think about. In your mind, you just dream that your child will be born healthy, hit developmental milestones according to the parenting books, and that everything will be smooth sailing. Then things may begin to happen. Perhaps your child does not talk, or is not playing quite like the other kids in a social setting.

It happens and everyone needs to know that they are not alone. As a parent, looking for resources to check on your child is the first step. I have seen the wonders of Early Intervention. We have had OT, PT, SLP, and beyond between the two boys in their early years.

Learning to Walk with PT

While it may have been hard to start the process, it was well worth it and I want others to know these programs exist for you and your children. On a past project, I shared some resources and wanted to pass them along here.

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Being a parent can often make you feel alone and unsure of how to handle certain situations. Some days your mind can be filled with questions that are nagging at you like:

  • What do you do if your toddler isn’t walking, talking, or feeding themselves?
  • How do you know IF you should be concerned ?
  • Our doctor says everything is fine, but is it really?
  • Do I talk to my friends about this, or keep it to myself?

These are just some of the questions that may be going through the mind of  a new or seasoned parent of a toddler. Remember, we all question how our children are developing. It is part of being a parent and perfectly normal to have some concerns.

Thankfully, you do not have to be alone in this journey. You are the best advocate for your child and know when something does not seem quite right. Thanks to New York State Early Intervention Services, you have another ally that is out there for you and your child.

What is Early Intervention (EI)?

EI  is a state wide program that provides a broad array of services to eligible infants and toddlers  (ages 0-3 years) with disabilities and their families. When you contact EI, you will be assigned a Service Coordinator that will help you to learn more about the EI program and determine your child’s level of services. According to the NYS Health Department, these services include:

  • family education and counseling, home visits, and parent support groups
  • special instruction
  • speech pathology and audiology
  • occupational therapy
  • physical therapy
  • psychological services
  • service coordination
  • nursing services
  • nutrition services
  • social work services
  • vision services
  • assistive technology devices and services

As a first time mother, I watched as my oldest son turned one and was not walking. At 18 months, I was alarmed that my son still could not let go and walk on his own. Each time I questioned this, I was told that some kids walk, others talk. I was naïve and finally saw the light when the director of my son’s daycare mentioned Early Education as an option when he was 20 months old. She told me that I could call and request an evaluation, so I did.  My son qualified for physical therapy services based on his low muscle tone. Just before his second birthday, my son was walking on his own. Thanks to Early Intervention, amazing therapists, and hard work – my son caught up with his peers.

If you think that your child may be behind on some milestones, please call your county’s office for Early Intervention. It does not hurt to let professionals assess your child and determine whether or not they would benefit from services. The more you push now, the better off they will be when they head into kindergarten and beyond.

Some Early Intervention county by county resources for those living in the Capital Region and New York State:

  • Albany County  – (518) 447-4820
  • Rensselaer County -  (518) 270-2626
  • Saratoga County – (518) 583-2498
  • Schenectady County – (518) 386-2815
  • Washington County – (518) 746-2400
  • A Parent’s Guide to the Early Intervention Program

If you have any words of wisdom, experiences you would like to share, or questions – please feel free to leave some comments below.

It's Me

Disclosure: Parts of this post were previously published on a project I worked on. The text is mostly the same, but I placed a new introduction to go along with a topic that continues to be important for families.

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Different Styles of Disney Transportation

The World of Disney has changed what people think of as modes of transportation. Movies, animation, and park experiences allow us to see different ways to get from one destination to another. This week, the theme of the Focused on the Magic Wordless Wednesday is Disney Transportation. Rather than keep it simple with the magical monorails, I went a little outside of the box after the first photo. Please fasten your seat belt and enjoy the ride.

Walt Disney World Busing

Fillmore at Art of Animation Resort

Public Works Car at Disney's Hollywood Studios

Walt Disney World Railroad

Storybook Circus Splash Area

Lego Toy Story friends in Downtown Disney

Dumbo at The Magic Kingdom

Focused on the Magic

Be sure to stop by Focused on the Magic by clicking on the button above to join in the Disney magic this week.

It's Me

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Tuesday Tales – Spaghetti is NOT a Finger Food (and other life lessons)

Autism RibbonImagine living in a world where you are not even aware that others do not see, hear, feel, and understand things the way you do. That is the reality for children, like my son, who have been diagnosed with Asperger’s Syndrome. Autism is a reality in our family that we fought hard to figure out. I have written in the past about the long struggle to connect the dots for our son. Getting a diagnosis meant that we had to revamp a lot of parenting styles, rethink how we reason with him, and be bigger advocates at school to address his rights.

My son is nine years old and VERY literal. He is honest to a fault and brags about being a math wiz because he doesn’t get that it can be interpreted in a bad way by his peers. His hunger for friends means that he can be easily victimized by children who take advantage of his being socially naïve. Sarcasm is my second language at times and it has been hard to grasp that NHL may never be able to take it and dish it back to me. To a stranger, my son would probably not catch your attention on most good days. Of course, should he get upset about something and start to cry it becomes obvious that something is going on. NHL’s feelings are raw and something that I wish more people understood. He feels on a level that is pure and not based on trying to butter someone up. When he gets nervous or upset, he get anxious and talks, moves around, and fixates on items. These are all coping strategies and ways that he stims. The problem is that most of his peers and a lot of people in the world of education do not get this. Often times, I forget since this is so new and fresh.

Spaghetti is NOT a Finger Food ( and other life lessons ) by Jodi Carmichael with illustrations from Sarah Ackerley is a must read. My mind is racing after reading the book and all for good reasons.

Spaghetti is NOT a Finger Food by Jodi Carmichael 

The main character of the book is Connor and we read about segments of a day in his life at school. Each chapter begins with a life lesson that Connor learns.

Inside Spaghetti is NOT a Finger Food

The illustrations and story really take you inside the mind of a child with Asperger’s. Two quotes from the book really hit me:

Sometimes it’s tiring having to explain myself.

The best thing about math is that it follows set rules that never change. Ever. If two times two equals four today it will equal four tomorrow.

I can only imagine this is something that my son may be feeling at times. I know I feel that way as the parent trying to be his advocate. People in the neuro-typical world often forget how literal our Aspies are and that changing rules of life confuse them and can make them more nervous.

Some of the items that I liked about this book:

  • We see that Connor does not pick up on body language of others. This includes with his teacher, the principal, and other student.
  • Sarcasm and abstract phrases are not understood by Connor. His gym teacher keeps using the same thing and each time it goes over his head.
  • Sensory issues are addressed. We first see this when Connor is waiting to see the principal and notes how he loves the smooth blue chair. Later, he states that smooth items are less confusing in the world.
  • Connor is a creature of habit. He wants to get to his spot in the cafeteria for lunch. He likes to be near the fire exit and will search them out when in a room.
  • Feeling bouncy seems to be how Connor “stims” and tries to cope with items or express his excitability with items in life.
  • Dogs, dinosaurs, and other topics are huge in Connor’s life. He likes to share his knowledge and does not know how to stop sharing when others have heard enough.
  • When trying to teach Connor a lesson, he needs them to be direct or he will interpret things in a different manner (see incident with stool in the library).
  • Connor is honest to a fault and it was witnessed when he told his teacher something that was not socially acceptable.

Constructive criticism about the book:

  • I wanted to read more about Connor. It was great seeing him at school, but I was also curious about life outside of school. Carmichael mentions that Connor is in third grade and that things are different this year with the principal. It made me wonder if he was just diagnosed.
  • I kind of wish Connor had said he was an Aspie so children reading could identify this. Perhaps when he went to see Mrs. Rossetti (social worker or psychologist) it could have been mentioned.
  • I wonder why Connor is sent to the principal by his teachers. It may be a way to help him settle, but to some readers it may be interpreted as something else like a punishment.

TechyDad has also read the book and we are trying to find a time to share it with both of our boys. Lots of lessons to be learned from this and we can use it to help NHL identify as an Aspie and even JSL (5) to see more from his big brother’s point of view. I definitely recommend it to all children (and adults) because it does help to give you a perspective of life with Asperger’s. Oh and I just heard back via Twitter that Connor will have another adventure coming soon. Check out the Tweet from Jodi Carmichael.

Tweet from author Jodi Carmichael

Have you read any books that capture the essence of children with special needs? I would love to know what they are. As always, please share what you have read recently. Be sure to link up to your book posts in the comments below. Include something you read on your own, with a child, or someone else. Tuesday Tales are all about spreading the love for books.

It's Me

Disclosure: We purchased this book on Amazon to read because social media chatter intrigued us from Little Pickle Press. If you are a member of Amazon Prime it is also available via loan to read on the Kindle. An Amazon Affiliate link is included in this post for the book mentioned. I will receive a percentage of money for the sale should you opt to buy the book through that link. The Autism Awareness ribbon icon above was created by Melesse and comes from Wikimedia Commons.

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Magical Mickey Ice Cream Bar Moments

Going to Walt Disney World is filled with magical moments and memories that we will always remember. I can recall meeting Figment for the first time, riding on Space Mountain with my father, and now, as a parent, I have some of these with my own children. Sometimes these moments have been around famous Disney foods like Mickey’s Ice Cream Bar.

First Mickey Bar Moments

In May of 2009, we brought the boys to Walt Disney World for their first adventure on an airplane and to see this magical destination. We have so many photos of the experience, but on the last evening of our trip we made sure to take a few messy photos. We bought the boys their first Mickey Ice Cream Bars and sat down in the Pop Century Resort to let them enjoy.

Mickey Bar eating at Pop Century Resort

NHL, five at the time, knew just how to attack his Mickey treat. JSL, who turned two during our visit, was not as sure. He needed a little assistance with getting inside the chocolate shell.

Eating first Mickey ice cream bar at Walt Disney World

Once inside, JSL quickly caught on and enjoyed the chocolate covered ice cream treat. Nana and Papa were there to watch the kids. Oh and perhaps it is now a tradition for visits with Nana and Papa since we did the same thing on our last night in May. The only difference was two bigger boys eating them super fast in the heat while sitting in rocking chairs at the Yacht Club Resort.

Do you have any special Disney treat moments to share? I would love to hear about them

Mondays-Magical-Moments

This post is part of the fun over at Super Jenn and her Monday’s Magical Moments Meme. To join in the fun and link up, head on over to the linky there.

It's Me

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Time to Give Hugs

Is there someone in your life that needs a hug, or maybe you do? January 21 is National Hugging Day™ and the perfect time to surprise someone that needs a good hug. Of course, everyday should and could be a day for a hug and I think I am a firm believer of this. I mean just look at this photo of my boys getting along and hugging each other, it could be contagious:

National Hugging Day - brother hug

Now, thanks to my bloggy friend Holly from Tropic Home and Family, I am going to Pay it Forward with someone else that I would like to give a hug to. I wish I lived closer to my friend Shannan (From Cribs to Car Key). She is such a strong woman, fantastic mother, and great person. She never judges, always listens, knows how to make me laugh, and dishes out great advice. Here we are together after we conquered the African Trek at Walt Disney World (thus the crazy hair).

Sending hugs to Shannan

Shannan has been there through a lot of drama in my life and helped me to keep a level head. She probably doesn’t realize how much she means in my life, but I am putting it out there for her to officially know. Thank you Shannan for always being a DM, PM, phone call, Tweet, text, or Skype call away. I know I will never be able to express what you mean to me, but you are like a virtual sister to me who I can complain to and gab about Disney with. Now we just have to figure out a way to get our states closer and meet up in person soon.

A huge thank you to Holly for sharing this idea – love it. It was also great to finally meet you and your family in December. FYI, she gives out a great hug as well.

Meeting Tropic of Mom

My question this week is inspired by Holly:

If you could give a hug to anyone right now (near or far), who would it be and why? If you would like to participate in Holly’s Pay it Forward project, click on the button below (those two cuties are Holly’s boys).

Tropic Home and Family

It's Me

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Thanks to Kailani at An Island Life for starting this fun for Friday. Please be sure to head over to her blog to say hello and sign the linky there if you are participating.

Aloha Friday by Kailani at An<br<br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br />
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    Island<br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br /><br />
    Life

Aloha #237

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